What is Retinoblastoma

Retinoblastoma (RB), is a rare form of eye cancer that affects the retina of infants and young children.  It occurs in approximately 1 in every 20,000 births.  About 60% of the children with retinoblastoma will have tumors in only one eye.  This is referred to as unilateral retinoblastoma.  The remaining 40% will have multiple tumors found in both eyes.  This is referred to as bilateral retinoblastoma.  RB can range dramatically in severity.  No two cases are identical nor are they necessarily managed in the same way.  a number of different treatments are available to children with RB.  The severity and location of the tumors will determine which treatments will be suggested. With early detection and modern medical care, the survival rate for children with RB is 96%. Ongoing research and new treatment developments are allowing an increasing number of affected eyes to be saved and are maximizing the visual outcome and quality of life of each affected child.

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